Grit, Wit and Lupus Fits

I’m Not Lazy, I’m Running on Empty

Lupus fatigue isn’t just feeling tired—it’s a crushing, full-body exhaustion that sleep can’t fix. For many living with chronic illness, everyday tasks feel impossible, and the emotional toll of being misunderstood adds to the weight. This post offers a raw, honest look at what it’s like to battle invisible fatigue, and why rest isn’t weakness—it’s survival. If you’ve ever felt like you’re carrying the world just by getting through the day, you’re not alone.

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My Experience with the Medtronic Spinal Cord Stimulator Trial

Living with lupus, fibromyalgia, and pericarditis means navigating constant pain and limited treatment options. When my pain management doctor suggested the Medtronic Spinal Cord Stimulator (SCS) trial, I felt pressured—but I gave it a try. While the device slightly reduced my lower body nerve pain, it didn’t help with joint inflammation or chest pain. This post shares my honest experience with the SCS trial, what to expect during the process, and why it ultimately wasn’t the right fit for me.

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The Dairy Wake-Up Call: How Dairy Triggered My Inflammation and What I’m Doing About It

Dairy intolerance isn’t just about digestion—it can trigger serious inflammation, especially in people with autoimmune conditions like lupus or fibromyalgia. After unknowingly consuming whey protein, I experienced bloating, joint pain, and even a pericarditis flare. This post explores the connection between dairy and inflammation, why lactose and casein can worsen autoimmune symptoms, and how switching to plant-based protein and non-dairy alternatives helped me reclaim my health.

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