For me, photosensitivity developed gradually after long-term prednisone use. Light—both natural and artificial—began causing physical discomfort that changed how I navigate daily life.
What Happens:
- Sunlight often triggers headaches or eye pain
- Artificial lighting (especially fluorescent) causes discomfort
- Screens require brightness adjustments or blue light filters
- Night driving becomes difficult due to headlight sensitivity
How I Manage It:
- Environmental adjustments: Using blackout curtains and dimmable lighting at home
- Protective measures: Wearing sunglasses indoors when needed
- Activity timing: Planning outdoor activities for early morning or evening
- Digital modifications: Using dark modes and screen filters consistently
What Helps Me Cope:
- Keeping notes on specific triggers to identify patterns
- Explaining my condition to friends/family when necessary
- Working with my doctor to balance treatment benefits and side effects
What I Wish Others Understood:
Photosensitivity isn’t about preference—it’s a physical reaction. Simple accommodations can make environments more accessible.
I’d be glad to modify this further to better match your actual experiences. Would you prefer more focus on any particular aspect of your situation?
